Well - everything is pretty status quo here.
Aubrey is still hooked up on an IV for fluids. She hasn't had any food or drink - hopefully she can start those tomorrow.
We have talked to the GI specialist and he's put a hold on 3 of the 5 medicines she typically takes as they may be causing and/or aggravating the pancreantitis. He ordered a CT scan and additional blood work. The CT scan will be tomorrow under some anethstesia so Aubrey can't move.
She's still quarantined to her room. Her mood is pretty good considering the fact that's she's been out of the crib only a few time today. We gave her a bath and then I've had to cuddle a couple of times with her!
I think tomorrow will be much better - we'll hopefully get more answers, try some real food and take her for a walk in the hallway or go play in the toy room.
Thank you for all our friends and family for helping with Molly!
That's all for now
Monday, October 20, 2008
October Surprise...and its not a good one.
While politicos are determining what the "October Surprise" will be for this Presidential Campaign....the Gosch family knows what our October Surprise is......Pancreantitis.
At 1:30 in the morning we learned that Aubrey has pancreantitis.
Aubrey started vomiting at 6:00 am yesterday and could not hold anything down the entire day. We thought it was just a flu bug but after 12 hours of not keeping any liquids down we brought her to the ER for fear of dehydration. At the ER they ran some blood work as a precaution. It was during these blood tests they found indications of problems with her pancreas and suggested she be admitted to the hospital for more immediate care.
They are still trying to determine how Aubrey got the pancreantitis - but the likely suspect is her anti-seizure medicine Depakote.
We're basically playing a waiting game. Until Aubrey is seen by a G.I. specialist she can not eat or drink anything. Therefore she's stuck on an IV in her hospital crib. We're also waiting for the Neurologist to provide some ideas of what to do for the siezure control if in fact the Depakote is causing Aubrey's health problems.
Ahhh - it never ends!
Thank you for keeping us in your thoughts and prayers - we'll keep you posted.
At 1:30 in the morning we learned that Aubrey has pancreantitis.
Aubrey started vomiting at 6:00 am yesterday and could not hold anything down the entire day. We thought it was just a flu bug but after 12 hours of not keeping any liquids down we brought her to the ER for fear of dehydration. At the ER they ran some blood work as a precaution. It was during these blood tests they found indications of problems with her pancreas and suggested she be admitted to the hospital for more immediate care.
They are still trying to determine how Aubrey got the pancreantitis - but the likely suspect is her anti-seizure medicine Depakote.
We're basically playing a waiting game. Until Aubrey is seen by a G.I. specialist she can not eat or drink anything. Therefore she's stuck on an IV in her hospital crib. We're also waiting for the Neurologist to provide some ideas of what to do for the siezure control if in fact the Depakote is causing Aubrey's health problems.
Ahhh - it never ends!
Thank you for keeping us in your thoughts and prayers - we'll keep you posted.
Tuesday, October 14, 2008
Bath Time Follies!
Just thought I'd do a quick post about the girls and their bathtime last night. Usually I give them separate baths - but last night I tried giving them one at the same time.
Aubrey started first and then after I washed her hair I let most of the water out but left just enough for Molly to lay in.
Oh my - what a hoot! I've never seen them interact with each other quite that much. They were both laughing so much and so loud. If you really get Aubrey going - her laugh is something pretty special - but Molly she's only 5 months and her giggles have been pretty few and far between and they are usually pretty quiet. Not last night. She had a great time watching Aubrey bop around the tub and thought it was hysterical when Aubrey would crawl around/on her. Aubrey would then feed off of Molly's laughs and would get even more excited.
It was so cute and really more efficient too!
Thats all for now
Aubrey started first and then after I washed her hair I let most of the water out but left just enough for Molly to lay in.
Oh my - what a hoot! I've never seen them interact with each other quite that much. They were both laughing so much and so loud. If you really get Aubrey going - her laugh is something pretty special - but Molly she's only 5 months and her giggles have been pretty few and far between and they are usually pretty quiet. Not last night. She had a great time watching Aubrey bop around the tub and thought it was hysterical when Aubrey would crawl around/on her. Aubrey would then feed off of Molly's laughs and would get even more excited.
It was so cute and really more efficient too!
Thats all for now
Friday, October 10, 2008
Are you ever ready?
Last night we had the opportunity to meet up with my cousin Kelly and her husband Matt. They are expecting their first child in January. We're very excited for them. As fellow parents - - I think it's easy to get excited when others join the club so to speak.
Kelly reminds me so much of myself just two years ago -- before Chris and I had kids. I had never changed a diaper, really didn't feel comfortable around babies, and I had no clue what to do to be a good mother.
As she was expressing those same feelings last night - - I gave her the proverbial "it'll just come to you naturally" line that I was often agitated about when I was pregnant the first time! But I guess it is true and now that I've lived through it - - there really seems like no other way to describe it other than that. No matter how many books you read, or people you talk to, or how many TLC shows you watch - - you can never really feel ready. But despite all that - it does work itself all out.
I guess the same has been true for Aubrey and her Angelman Syndrome. Just as no one seems to feel ready for parenthood in general - - no one is ever ready to be a parent of a disabled child. And once the diagnosis comes and all the articles have been read, the advice has been mulled over, and the therapies begin -- you're still not "ready." But that's okay too. I realized last night that the same message I gave to Kelly about her apprehensions of welcoming a newborn into their lives I need to remind myself of - - "it'll just come to you naturally"
Kelly and Matt will be great parents and they will beautifully navigate through the joys and trials that parenthood brings just as Chris and I will continue to be great parents to Aubrey and Molly - no matter what their differences may be.
So while you may never be fully "ready" at least it's comforting to know that you can still be okay!
That's all for now.
PS - - Kelly and Matt - it was so great to see you last night. I can't wait to see if it's a boy or a girl!
Kelly reminds me so much of myself just two years ago -- before Chris and I had kids. I had never changed a diaper, really didn't feel comfortable around babies, and I had no clue what to do to be a good mother.
As she was expressing those same feelings last night - - I gave her the proverbial "it'll just come to you naturally" line that I was often agitated about when I was pregnant the first time! But I guess it is true and now that I've lived through it - - there really seems like no other way to describe it other than that. No matter how many books you read, or people you talk to, or how many TLC shows you watch - - you can never really feel ready. But despite all that - it does work itself all out.
I guess the same has been true for Aubrey and her Angelman Syndrome. Just as no one seems to feel ready for parenthood in general - - no one is ever ready to be a parent of a disabled child. And once the diagnosis comes and all the articles have been read, the advice has been mulled over, and the therapies begin -- you're still not "ready." But that's okay too. I realized last night that the same message I gave to Kelly about her apprehensions of welcoming a newborn into their lives I need to remind myself of - - "it'll just come to you naturally"
Kelly and Matt will be great parents and they will beautifully navigate through the joys and trials that parenthood brings just as Chris and I will continue to be great parents to Aubrey and Molly - no matter what their differences may be.
So while you may never be fully "ready" at least it's comforting to know that you can still be okay!
That's all for now.
PS - - Kelly and Matt - it was so great to see you last night. I can't wait to see if it's a boy or a girl!
Monday, October 6, 2008
Campfires, Pumpkins and More
Well -we had quite the weekend!
FRIDAY
On Friday night we hosted our last Friday Night of Fun at our house before we have to start boxing things up for our move. It was great. We had some friends over for pizza and then Chris even brought out the fire pit and we roasted marshmallows and talked until all the kids fell asleep. Other than the fact that Jeremy and Beth weren't there - it was a perfect evening.
SATURDAY
The fun didn't stop there. My parents came down from South Dakota for the weekend too. My mom can go about 3 weeks without seeing Molly and Aubrey so she was due for a grandkid fix. We had a pretty lazy Saturday of watching football, playing with toys, having bathtime, and a trip to Target. So funny how life changes with kids and a trip to Target is "the" event for the night!
Also funny how we never seem to leave the toy aisle without a little something for the girls. Aubrey really lucked out this time and received an early birthday present. It's a table for her to play at. It's a perfect height for her to pull up on her own and practice standing while playing with toys. Here's a link to a video of her standing up to it. Thanks GRANDMA!!!
http://www.dropshots.com/egosch#albums/Videos
Also funny how we never seem to leave the toy aisle without a little something for the girls. Aubrey really lucked out this time and received an early birthday present. It's a table for her to play at. It's a perfect height for her to pull up on her own and practice standing while playing with toys. Here's a link to a video of her standing up to it. Thanks GRANDMA!!!
http://www.dropshots.com/egosch#albums/Videos
SUNDAY
If that wasn't enough for one weekend we went to Vala's Pumpkin Patch on Sunday afternoon. I wasn't quite prepared for how big this place was! Wow! They had hay rides, petting zoos, a train, multiple food venues, and a 5 acre corn maze. None of which we really participated in!! I think the girls will get way more out of it in a year or two.
Our basic goal was to try and get a good family picture - a feat which is nearly impossible with how fast and fidgety Aubrey moves and how young Molly is - - but we tried anyway - - here are the best ones. Note it's almost better when we don't know that there's a picture being taken from behind!!
After about 2 hours my parents had to leave to start back home - - and we were just about to leave too - but we thought we'd go check out one area that we hadn't seen yet. So glad we did or we would have missed Aubrey's favorite part!! She loved the "Pumpkin Pillow" which is basically a huge air-filled surface that kids can jump on trampoline style. She was giggling the whole time!! Here she is on it:
It was a great weekend of campfires, pumpkins and more!
- That's all for now.
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