Thursday, May 21, 2009

Aubrey Started Horse Therapy

Aubrey started Hippotherapy (aka Horse Therapy) this week at HETRA http://www.hetra.org/

Here's a little blurb from their website that explains it better than if I tried to:

HETRA serves a variety of clients including Children and adults with disabilities such as cerebral palsy, spina bifida, muscular dystrophy, cystic fibrosis, brain tumors, head injuries, blindness, autism, and strokes. Our students benefit from therapeutic riding in a variety of ways. The rhythmic motion of the horse at the walk helps to relax tight spastic muscles. Sitting on the horse encourages students to hold themselves up which strengthens neck and trunk muscles. Riding also stretches hip and thigh muscles, and improves balance. Interaction with the instructor helps students follow directions, extend their attention span and work on concepts such as right and left. Interaction with the horse allows the students to develop a bond with the animal that improves self-esteem and builds confidence. Each student rides for approximately 30 minutes one time per week, and most students are assisted by a leader and two sidewalkers throughout their session. Two of our instructors are Occupational Therapists who monitor the students progress throughout their participation in the program.

Okay - so how did it go - I know that's really what you want to read about!

It was a typical first session! Every first session with a new therapy it takes Aubrey some time to get comfortable and it takes even more time for the new therapist to really "get" Aubrey. We were ready for this though - it's a natural response for any of us in a new situation - so no big surprises.

We were very pleased with how well Aubrey took to the horse - she was not scared one bit and the horse didn't seem to mind her wiggling and squirming nature either. So I know in time the horse Kayla and Aubrey will become great friends!

Aubrey's biggest hurdle will be getting used to wearing the required helmet. She doesn't mind wearing it - but the straps that dangle down that are causing the problem. She was OBSESSED with chewing on them. It's all she wanted to do so she didn't tend to much else! We tried to tuck them away - but she'd find them or they'd eventually slip out - and then back to her incessant chewing. We'll likely buy a bike helmet for her to wear for practice - so she can get over the strap obsession!

Throughout all of it, Molly and I were watching from the sidelines and Chris was in the ring with them but not right up there. You could tell he wanted to jump in and help so bad - but until we're formally trained as a Side Walkers - we can't be right up there with her during the actual session. You see - in almost every other therapy we've started with Aubrey (Physical, Occupational, Speech, ect) it's usually Chris that gets Aubrey to initially tune into the session. He also provides a good example for the new therapists to see what Aubrey responds to best. Aubrey is such a daddy's girl - and he just has this special way with her to get her to focus. She missed out on this due to the safety rules this session.

But with more helmet practice, more familiarity with each other, and Chris and I getting "officially" trained - I think this is going to be really good for her. Her lack of control and balance is the biggest thing that is holding back from walking independently - so we think this therapy will really assist her in these areas!

Here are some pictures of her on the Kayla the horse - enjoy!

Wednesday, May 20, 2009

Angelman Walk A Thon was a HUGE Success!

On Saturday May 16th - we had the Angelman Syndrome Walkathon at Shadow Lake Towne Center. There were similar walks taking place in 23 other cities across the nation - but this was the first one in the Omaha area!

We were blown away - especially given the fact that it was the first year!

Nearly 500 people were at the walk despite the cold and windy weather and we raised over $32,000 for the Angelman Syndrome Foundation!! This money will go directly to research projects for a possible cure and educational and support materials that will benefit all Angelman individuals including Aubrey!

We would like to thank each and everyone that showed up to support Aubrey at the Walk. She had a wonderful showing.

The UNO Dance Team came early in the morning to help with registration. They also did a small performance to get the event officially kicked off and finally walked together in support of their biggest fan Aubrey.

The Union Pacific Daycare made a big splash with the Pink and Green "Team Aubrey" shirts. They seemed to be everywhere! From Aubrey's current teacher Miss Katie - to her first one she had at 8 weeks old Miss Rebecca - they were all there in support! And Kathie - the director of the daycare - assisted with the whole set up and months of organization. She really went above and beyond to make the day a success for Aubrey and all the Angel families!

We were of course happy that so many of our family and friends from work and church could take part in the day with us as well. My parents and sister and cousins were all there. But we hope there are no graduations or confirmations that conflict next year - so we can get the whole clan together!! We did have our full "Omaha family" in attendance. Beth, Tonya, and Rebecca - my best friends in Omaha - were there in full force. Even 4 day old Brody Thomas made the walk!!!

Finally - we would also like to thank everyone that had the opportunity to donate to Aubrey's online fundraising page: http://www.angelman.org/TeamAubrey/

We're so grateful for your generous support! You were there in spirit!

Here are some pictures of the day:


Shirts designed by Jessica at Aubrey's Daycare - they are AWESOME!



We're waiting for the Walk to start!


UNO Dance Team doing a little performance to get things kicked off!



This is our attempt to take a picture with all the Angelman kiddos. Didn't get a good one - but there were about 15 children from 15 months to 20 years old with Angelman Syndrome in attendance. Most kids were from Nebraska - but we did have some participants from Iowa, Missouri, adn South Dakota.


Aubrey and her Daddy - practicing her steps!


Uncle Nate, Aunt Mara welcome Kara halfway through the walk!



Who knew the Buffalo Wild Wings mascot was an Angel too!!


Our family after the walk was all done!

What a great day - I can't wait for next year! Our wheels are already spinning on how to make it bigger and better!




Friday, May 8, 2009

Molly's First Birthday!

We had a nice little party for Molly last night.

I still can't believe she's ONE!

Here's some fun pictures of the birthday girl and her party: