Okay so here's the update.
The CT Scan results came back and by 8:00 pm - we finally had an update from both her neurologist and the GI specialist!! It was the longest day of waiting - but I feel much better with having a plan.
There was nothing troubling found in the CT scan(yeah!) - in fact the pancreas wasn't even too inflamed so Aubrey is lucky that she's had a very mild case of pancreatitis.
Throughout the day Aubrey gained back her energy and smiles and is doing so much better. In the words of her neurologist tonight...."I thought I was supposed to see a sick child....where is she?"
She received the okay to try liquids so her sippy cup is back in action! And we should be getting some food for her very soon.
The GI specialist gave the okay for her to be removed from isolation status - - I think I'm most excited about this. We'll actually be able to leave the room and take a walk. So after we give her a little food - which I pray she takes down no problems - - we'll take a trip to the big play room!
As for the treatment plan - she will start up again on her Topomax for seizure control and we'll monitor closely with her neurologist - we'll need to have a check-up with him first thing next week. The GI doctor would like to keep her in the hospital for 2-3 more days to monitor her food intake and check her blood and enzyme levels. Once he's satisfied that she can hold food down and her levels trend back in the right direction - he'll send her home. He did mention that Aubrey will need to follow a strict low-fat diet for a few months. This made us laugh - because until now - we've been advised by a nutritionist to pump extra calories as much as we can with butter, cream, higher fat items due to her low weight! Oh well - maybe if Aubrey is on a strict diet - she'll help me with mine and I can start to lose that baby weight!
So it sounds like more waiting - - but at least we can venture out of the room and not be hooked up to the IV anymore - yeah!!
What a difference a day makes.
Thanks again to everyone for your support. Aubrey especially loved all the visits and gifts she received today.
Tonya and Rebecca - Thanks for dropping off lunch and movies!
Delany, Kerri, and Evelyn - Thanks for the laughs and the ladybug toy! I hadn't seen Aubrey laugh for over 3 days - amazing what another Angel can bring out! Sorry our visit got cut short.
Beth - Thanks for supper and the visit - I'm so glad you had a chance to meet Delany and her family. I only hope that Aubrey can grow to be such a kind, well behaved, smart girl like Delany - - isn't it great to see the possibilities in real life!
Brian and Heather - Thank you for the plant and stuffed animal! I know you wanted balloons - but the Big Bird pot is pretty darn cute! I wish you lived here too - but someone has to keep South Dakota's District 32 in order!
UP Marketing and Sales - Thank you for the balloons and stuffed animal. Aubrey loved them both.
Well - - Aubrey is zonked out so I might take this opportunity to catch up on some sleep myself.
It's still amazing to me what a night and day difference 24 hours can make.
That's all for now.
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2 comments:
Elise,
I was so disappointed that you and Aubrey couldn't make our Walk-a-thon meeting. I was really looking forward to my friends, who are helping me organize this, meeting you and your daughter. I can see that you had other plans though... Glad to read that she is doing better and that Delaney was able to make her giggle. :) Please stay in touch so I can let you know how this walk-a-thon is taking shape! I think you will be pleased!
Melissa (Delaney's favorite aunt)
Wow it's great to hear that Aubrey's doing better and will get to go home soon. What a scare! I'll have to remember to check the blog more regularly. You all are in my thoughts!
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