Friday, December 12, 2008

Long Time Since I've Posted

Well - -

It's been nearly 2 or 3 weeks since I've had a chance to post anything.

The week after Thanksgiving - I got very very sick. I basically couldn't hold any food down for 4 days in a row and lost about 15 pounds. Not exactly the best way to lose my baby weight - but I'll take it. I'm feeling much better now. Aubrey was sick during that time too - but she seemed to bounce back quite well. Molly was the only member of our family that did not get the flu.

Anyway - that's why I've been so behind with everything. With all the time spent getting caught up at work and at home -- I've had little time for my blogging!

So what did you miss:

1 - House is going to be done last week of January.

It's starting to look like a real house - they have all the drywall, doors, trim, and cabinets up now and just started painting and staining the inside this week. It's starting to become pretty real that we'll be moving into a new house in nearly a month - -CRAZY!

2 - Welcomed another Angel to the AS Family.

About a month or so ago a mother in Connecticut contacted me after seeing pictures and videos of Aubrey on this blog. She saw so many similarities with Aubrey and her son Jack. Jack is about a year older than Aubrey and still did not have a diagnosis other than PVL. Well - - fast forward to this week - -and Jack received his blood work back confirming that he is deletion positive for Angelman Syndrome(same at Aubrey). How neat that Aubrey and this site helped another family across the country find an answer. What a neat thing!

Both Jack and Aubrey have the PVL brain damage in addition to AS - -this, as I understand it, is VERY VERY RARE - - maybe a handful of cases in North America. I'm glad that we'll have each other through this journey.

Welcome to the family Melissa and Jack!!!

3 - Getting Ready for the Holidays

We can't wait to go back to South Dakota for Christmas to see everyone. We'll be in Beresford the night of Tue Dec 23rd and be there until Fri Dec 26th. We'll head up to Aberdeen Friday afternoon and drive home Monday the 29th. I can't wait to see as many family and friends as possible!


Well - - that's about it from here in Omaha. I really need to get more pictures and video up of the girls - because let's be honest -you'd much rather see that than read - right!?!

That's all for now

1 comment:

Sunshine said...

Hey I just saw the post about us, thanks!! I just came on to see what you all were up to and saw it. yay!! I think I need to start a list of those of us who have a kid with PVL and AS. I'm pretty sure Jack makes at least 5 or 6.